Know the Signs, Fight for Victory

Blog Category: Awareness

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

From Survivor to Advocate and a Roar for Aortic Awareness

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

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Awareness, Family Planning, Quality of Life April 8, 2025April 9, 2025

Leticia’s Pregnancy Story: “I know how to take care of myself…”

Decisions around family planning, pregnancy, and related considerations are very personal. We...

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Awareness March 14, 2025March 14, 2025

“Marfan just happens to be a part of me…” Andrea’s Story

Andrea Aguiar shares her first-person experiences living with Marfan syndrome in this guest...

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Awareness, Community, Conference March 11, 2025March 11, 2025

Teen Voices: Overcoming Challenges

Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...

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Awareness, Community March 11, 2025March 11, 2025

Provider to Patient: A Nurse’s Journey Through Loeys-Dietz Syndrome Diagnosis & Heart Surgery

When George (Jorge) Carrillo, MSN, RN was diagnosed with Loeys-Dietz syndrome in August 2024,...

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Awareness February 27, 2025March 11, 2025

Finding Purpose in New Places: Traveling the World Alongside Life with Loeys-Dietz Syndrome

(Advisory: This Story Discusses Aortic Dissection) Throwing Caution to the Wind Moving...

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Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.