My Marfan Story: Kacey Lamphier
The month of February is extra important to me as it marks the month of the heart. I have been...
Blog Category: Community
Marfan Diagnosis: A Game Changer
A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...
My Marfan Story: Home for Christmas
Auburn's late husband, Ted, with their son, Kelly. In November of 1981, my little family of...
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back
Sydney Lerman, of Westchester, NY, is a smart, fun-loving, and spirited daughter, sister, cousin,...
Beautiful Gift
Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older...
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