Working with Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
Blog Category: Healthcare Management
Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...
The Easiest Resolution: Taking Control of Your Health Journey in 2019
The ball has dropped, and we rang in the New Year. Ready or not, 2019 is here. As we slide back...
Jim Cavan: The Journey to Backpack Health
Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
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