Choices
The moment in which a child is born is the most miraculous moment of opportunity. In the moment in...
Blog Category: Quality of Life
Top Five Things I Wish I Knew Before My Aortic Surgery
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this...
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...
Top 10 Benefits of Remote Jobs for those with a Chronic Condition
When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
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