Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Know the Signs, Fight for Victory
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...
Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...
Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...
Connection is at the core of the Snyder family’s resilience. Through a combination of close...
There are few things stronger than a mother’s intuition. The strength of this “knowing” is...