In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Save the Dates: Upcoming Symposia
Whether you have attended numerous Foundation events or are brand new to our offerings, we invite...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
For Healthcare Providers Watch & Share, 3 Things Every ED Pro Should Know About Aortic Emergencies
https://www.youtube.com/watch?v=SnHvBOjdUK0&feature=youtu.be In this two-minute video,...
Announcing 2023-2024 Foundation Programs
As promised in July, we are pleased to announce our plans for in-person programming and events...
Announcing Atlanta Conference 2025, Virtual Global Conference 2024
Thank you to everyone who made our 2023 Chicago Conference an enriching experience! Our...
Foundation Expands Mental Health Resources
The Foundation has launched a new Mental Health section on its website as part of a plan to...
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