From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
Op-Ed: STAT Action Saved My Life, It Could Save Yours
At 38, I nearly lost everything in an instant. Marfan Foundation Board member and...
Marfan Foundation Issues Updated “Know the Signs” Infographic Ahead of Aortic Dissection Awareness Month in September
In September, the Marfan Foundation shines a light on the risk of fatal aortic dissection - a...
Nuestro camino con el Síndrome Marfan
Mi nombre es Mary de Arias de nacionalidad peruana, radico junto a mi familia en...
GenTAC Alliance becomes Genetic Aortic Network, a Division of the Marfan Foundation
In a move aimed at both emphasizing the importance of the Marfan Foundation's "science arm" and...
Community Member, Physical Therapist
Diane Rich Shares Her 2025 Conference Experience Diane Rich, PT, DPT offers her first-person...
“I Just Feel at Home Here”: The Marfan Foundation’s 40th Conference Empowers Attendees to #KnowConnectThrive
From July 10 to 13, attendees from 44 states and 10 countries gathered in Atlanta for the...
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