The Marfan Blog

School’s in Session: What Better Time to Adopt a School!

If you have school-aged children with Marfan syndrome or a related disorder, you know how...

Awareness, Volunteer September 27, 2013February 25, 2021

Community, Conference September 16, 2013January 31, 2024

vic • to • ry

[vik-tuh-ree, vik-tree] A success or superior position achieved against any opponent,...

Know the Signs September 16, 2013February 25, 2021

Aging with Marfan Syndrome: 5 Common Questions

Well, for many people, this just brings up more questions. Living longer is great, but aging comes...

Awareness, Community, Volunteer September 3, 2013February 25, 2021

Running for Those Who Can’t

Why did I subject myself to the torment of a half marathon along the unforgiving pavement of Lake...

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