Know the Signs, Fight for Victory

Blog Category: Awareness

Awareness, Diagnosis, Education, Healthcare Management December 13, 2021December 13, 2021

My Doctor Knew Me – He Knew Amy

In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...

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Advocacy, Awareness, Community, Know the Signs December 3, 2021December 3, 2021

An Eagle Scout’s Generosity in Memory of a Friend

Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...

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Advocacy, Awareness, Community, Diagnosis, Surgery November 16, 2021

Three Keys to a Positive Outcome

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

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Awareness, Community, Quality of Life September 8, 2021September 8, 2021

Power Couple Surges Through Connective Tissue Condition to Help Others

On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...

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Awareness, Community, Diagnosis, Quality of Life, Surgery June 30, 2021July 27, 2021

Beauty Enthusiast Overcomes Obstacles

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

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Awareness, Diagnosis, Quality of Life May 3, 2021July 27, 2021

Losing My Sight Saved My Life

Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...

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and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.