#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
Blog Category: Awareness
Awareness Feels Good
I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...
Finding Marfan: A Breakthrough in Mental Health
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...
Adolescent, Angry & Aware: Learning to make sense of ourselves and our bodies
Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...
Empowerment Means Saying Goodbye to the Sidelines
Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...
Lifesaving Education
There are few things stronger than a mother’s intuition. The strength of this “knowing” is...
We Found Our Family
For most people, family is the first group of people we know and trust. Newborn babies know their...
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