Blog Category: Awareness

Awareness, Community, Quality of Life November 27, 2018February 24, 2021

Empowerment Means Saying Goodbye to the Sidelines

Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...

Awareness, Community, Quality of Life November 13, 2018February 24, 2021

Lifesaving Education

There are few things stronger than a mother’s intuition. The strength of this “knowing” is...

Awareness, Community, Quality of Life November 9, 2018February 24, 2021

We Found Our Family

For most people, family is the first group of people we know and trust. Newborn babies know their...

Awareness, Community February 27, 2018February 24, 2021

My Marfan Story: Kacey Lamphier

The month of February is extra important to me as it marks the month of the heart. I have been...

Awareness, Community February 20, 2018February 24, 2021

Marfan Diagnosis: A Game Changer

A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who...

Awareness January 31, 2018February 24, 2021

Marfan Awareness: Paula’s Story

In early January 1985, Dr. Reed Pyeritz, of Johns Hopkins Hospital in Baltimore confirmed, through...

Awareness, Community, Family Planning February 8, 2016February 24, 2021

Jamie Efurd – My Marfan Story

“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...

Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory