Jamie Efurd – My Marfan Story
“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...
Know the Signs, Fight for Victory
“Make it through the door, Jamie. Make it through the door.” Those were my first thoughts as...
On May 17, 2015, Alix McLean Jennings, of Madison, NJ, led Team Cassie in the Superhero...
The end of this year will mark 10 years since my world changed, 10 years since my parents scoured...
This fall, we held the Adopt-A-School Victory Challenge to encourage parents, guardians,...
Before I share my story, I want to clarify that the title of my book, “The Bigs,” has nothing...
Do you still get blank stares from people when you say that you have Marfan syndrome? How many...
If you have school-aged children with Marfan syndrome or a related disorder, you know how...