Know the Signs, Fight for Victory

Blog Category: Conference

Community, Conference, Quality of Life May 3, 2023May 4, 2023

A Teen’s Perspective: Finding a Community at Conference

As a teen with a connective tissue condition, building relationships with others who “get” you...

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Advocacy, Conference, Diagnosis, Know the Signs April 6, 2023April 24, 2023

A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members

Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...

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Community, Conference March 11, 2019February 24, 2021

Finding Commonality at the Marfan Annual Conference

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...

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Community, Conference, Quality of Life May 26, 2018February 24, 2021

A Make-Over Because of the Marfan Annual Conference

Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...

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Conference May 15, 2017February 24, 2021

“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models

The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.