Jim Cavan: The Journey to Backpack Health
Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...
Blog Category: Healthcare Management
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center
Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...
Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare
Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is...
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