Research Archives - Marfan Foundation

Diagnosis, Healthcare Management, Research November 23, 2020February 24, 2021

Your Questions Answered: Medical Geneticist and Genetic Testing

If you have a connective tissue condition or are seeking an evaluation for one, you know that you...

Awareness, Quality of Life, Research February 11, 2019February 24, 2021

Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...

Connection is at the core of the Snyder family’s resilience. Through a combination of close...

Community, Healthcare Management, Research September 24, 2018February 24, 2021

Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...

Community, Research May 7, 2018February 24, 2021

During National Nurses Week, I would like to honor the wonderful men and women who serve...

Research March 28, 2018February 24, 2021

Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat...

Quality of Life, Research January 18, 2018February 24, 2021

Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...