Sweet Relief
Guest writer Mazzy Sass is a junior at Schreiber High School in Port Washington, NY (also the...
Blog Category: Surgery
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
Top Five Things I Wish I Knew Before My Aortic Surgery
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
Mental and Physical Recovery from Surgery
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this...
A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome
My interest in Marfan syndrome started many years ago when I was in high school in South Africa....
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
