A Costco Shopper Saved my Life
“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...
Blog Category: Awareness
Stronger Together
A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year...
Healthy Life Comes From Awareness
I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...
Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
Fierce Compassion: Becca Weust and the Stories She Tells
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
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