The Marfan Foundation Launches Kids Club, a Virtual Social Group for Children
Parents asked...we responded! Kids Club, our new virtual group, is for children ages 9-12 with...
Author: The Marfan Foundation
The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.
How It’s Going
In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...
The Marfan Foundation Marks Marfan Awareness Month (February) with an Array of Education and Awareness Opportunities
Education and awareness is always important to The Marfan Foundation. Marfan Awareness Month is...
Marfan Syndrome Series to be Featured on On-Air-Advocate Podcast during February
The On-Air-Advocate, which provides education, support and empowerment for everyone with different...
International E3 Summit Presentations Now Available on YouTube
The Marfan Foundation has made the 60 English presentations given during its International...
The Marfan Foundation Mourns the Loss of Ann Reinking
It is with great sadness and a heavy heart that the Foundation mourns the loss of Annie Reinking,...
Surgery Webinar Series Featuring Five Leading Surgeons Scheduled for February
People with Marfan syndrome frequently have problems with their heart and blood vessels....
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