Know the Signs, Fight for Victory

The Marfan Blog

Pain and Perseverance

When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...

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Awareness, Community, Quality of Life March 4, 2020February 24, 2021

Awareness, Volunteer February 19, 2020July 22, 2021

Reflecting on Awareness

Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...

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Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

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Education, Healthcare Management August 24, 2019February 24, 2021

Working with Your School Nurse

For parents of a child with a connective tissue condition, worrying is a daily habit. The...

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Community, Conference March 11, 2019February 24, 2021

Finding Commonality at the Marfan Annual Conference

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...

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Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.