Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
The Marfan Blog
Fierce Compassion: Becca Weust and the Stories She Tells
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Reflecting on Awareness
Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...
Jimmy’s Magic Turtle
Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...
#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
Working with Your School Nurse
For parents of a child with a connective tissue condition, worrying is a daily habit. The...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
