Jim Cavan: The Journey to Backpack Health
Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June. As...
The Marfan Blog
A Workplace Issue You Probably Didn’t Anticipate
It never gets easier. Each time I have to tell someone new about my husband's condition, it seems...
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
Earthly Angels
During National Nurses Week, I would like to honor the wonderful men and women who serve...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
