In 2018, Resolve to Practice Self-Care
When we wish others a healthy and happy new year, we do not say those words lightly. In many...
The Marfan Blog
My Marfan Story: Home for Christmas
Auburn's late husband, Ted, with their son, Kelly. In November of 1981, my little family of...
Tips To Help You Make the Most Out Of Your Doctor Visits
Spending some time in preparation for a doctor visit will help you get the most out of it and...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
The Journey of [Control] Acceptance
Life is constantly in session, whether I am ready for it or not. There is a never ending battle...
Physical Therapy: Myths and Facts
People everywhere are experiencing the transformative effect physical therapy can have on their...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
