Marfan Awareness: Paula’s Story
In early January 1985, Dr. Reed Pyeritz, of Johns Hopkins Hospital in Baltimore confirmed, through...
The Marfan Blog
Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key
Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...
In 2018, Resolve to Practice Self-Care
When we wish others a healthy and happy new year, we do not say those words lightly. In many...
My Marfan Story: Home for Christmas
Auburn's late husband, Ted, with their son, Kelly. In November of 1981, my little family of...
Tips To Help You Make the Most Out Of Your Doctor Visits
Spending some time in preparation for a doctor visit will help you get the most out of it and...
To Know or Not to Know: Genetic Testing and Marfan Syndrome
How the value of genetic testing has improved Just a few years ago, diagnosis of Marfan...
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
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