Beautiful Gift
Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older...
The Marfan Blog
Why I’m Grateful for Marfan Syndrome
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly...
“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models
The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly...
Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD
Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels,...
Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center
Jan Lynch, MSN, RN, joined The Marfan Foundation staff in April as the Director of the Help &...
Meet Your Gene: An Introduction to the Marfan Gene and Current Research
Roanne Weisman, a healthcare writer from Boston who has Marfan syndrome and long-time member of...
When it Feels Like Marfan is Winning
About six months ago, I made the decision to “retire” from my career as a full time nanny at...
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