Blog Category: Community

Awareness, Community, Family Planning, Quality of Life February 23, 2021February 24, 2021

Marfan Moms: The Ultimate Support Group

When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...

Community, Healthcare Management, Quality of Life, Surgery December 1, 2020September 14, 2023

Top Five Things I Wish I Knew Before My Aortic Surgery

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...

Awareness, Community April 23, 2020February 24, 2021

Trendsetting Volunteers Encourage Others to #DanceForVictory

Have you seen this? Several leading Foundation volunteers recently launched a new social media...

Awareness, Community, Education April 6, 2020February 24, 2021

Fierce Compassion: Becca Weust and the Stories She Tells

A few years ago, while writing stories for a healthcare company, I found myself in conversation...

Awareness, Community, Quality of Life March 4, 2020February 24, 2021

Pain and Perseverance

When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...

Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

Together, We Can Know the Signs
and Fight for Victory

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory