Community Archives - Page 5 of 11

Awareness, Community April 23, 2020February 24, 2021

Trendsetting Volunteers Encourage Others to #DanceForVictory

Have you seen this? Several leading Foundation volunteers recently launched a new social media...

Awareness, Community, Education April 6, 2020February 24, 2021

A few years ago, while writing stories for a healthcare company, I found myself in conversation...

Awareness, Community, Quality of Life March 4, 2020February 24, 2021

When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...

Awareness, Community, Related Conditions February 6, 2020February 24, 2021

Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

At a time when technology infuses our lives in almost every way, it is hard to imagine that the...

Community, Conference March 11, 2019February 24, 2021

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...