Know the Signs, Fight for Victory

Blog Category: Community

Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

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Community, Conference March 11, 2019February 24, 2021

Finding Commonality at the Marfan Annual Conference

The diagnosis of a potentially life-threatening genetic disorder like Marfan syndrome, Loeys...

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Awareness, Community, Quality of Life November 27, 2018February 24, 2021

Empowerment Means Saying Goodbye to the Sidelines

Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...

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Awareness, Community, Quality of Life November 13, 2018February 24, 2021

Lifesaving Education

There are few things stronger than a mother’s intuition. The strength of this “knowing” is...

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Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.