Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
Blog Category: Know the Signs
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
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