Mi Historia con el Síndrome de Marfan y la Disección Aórtica
My Story with Marfan Syndrome and Aortic Dissection La bloguera invitada Emily Herrera...
Blog Category: Know the Signs
From Survivor to Advocate and a Roar for Aortic Awareness
Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...
Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
CAUTION: This story focuses on a detailed account of fatal childhood aortic dissection; the...
The Cruz Family
Now that I see things more clearly about my son’s condition, I can tell you our story. My...
Let’s Just Get Checked Out
I'd actually heard about Marfan Syndrome before my dissection. It was mentioned on a TV program...
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
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