Quality of Life Archives - Page 5 of 10

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

Awareness, Diagnosis, Quality of Life February 20, 2019February 24, 2021

I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...

Awareness, Quality of Life, Research February 11, 2019February 24, 2021

Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...

Awareness, Community, Quality of Life November 27, 2018February 24, 2021

Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...

Connection is at the core of the Snyder family’s resilience. Through a combination of close...

Awareness, Community, Quality of Life November 13, 2018February 24, 2021

There are few things stronger than a mother’s intuition. The strength of this “knowing” is...

Awareness, Community, Quality of Life November 9, 2018February 24, 2021

For most people, family is the first group of people we know and trust. Newborn babies know their...