Lifesaving Education
There are few things stronger than a mother’s intuition. The strength of this “knowing” is...
Blog Category: Quality of Life
We Found Our Family
For most people, family is the first group of people we know and trust. Newborn babies know their...
Globetrotting When It’s Hard to Trot
I’ve always dreamed about exploring new places, but in my fantasy explorations, my body is...
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
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