Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
Blog Category: Quality of Life
Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key
Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...
In 2018, Resolve to Practice Self-Care
When we wish others a healthy and happy new year, we do not say those words lightly. In many...
My Marfan Story: Home for Christmas
Auburn's late husband, Ted, with their son, Kelly. In November of 1981, my little family of...
Tips To Help You Make the Most Out Of Your Doctor Visits
Spending some time in preparation for a doctor visit will help you get the most out of it and...
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a...
The Journey of [Control] Acceptance
Life is constantly in session, whether I am ready for it or not. There is a never ending battle...
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