Globetrotting When It’s Hard to Trot
I’ve always dreamed about exploring new places, but in my fantasy explorations, my body is...
Blog Category: Quality of Life
Living with the Typical Marfan Body Type
“Oh, my goodness, how skinny you are.” “It takes a big man to love a skinny...
A Make-Over Because of the Marfan Annual Conference
Ashley Burks was 23 when her life changed. That year, 2005, she excitedly attended the Marfan...
The Marfan Foundation and Backpack Health: Frequently Asked Questions
The Marfan Foundation announced that, starting today, it is making a new app available for free to...
Gone But Never Forgotten: A New Way to Think About Grief
I like to think that I’m a fairly positive person, especially when it comes to my Marfan...
Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key
Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is...
In 2018, Resolve to Practice Self-Care
When we wish others a healthy and happy new year, we do not say those words lightly. In many...
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