Activating Your Activism
Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...
Know the Signs, Fight for Victory
Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...
Awareness. In the Marfan world, this is one word with infinite meanings and feelings attached....
When you have a lifelong condition like Marfan syndrome, your daily experience looks different...
Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...