My Doctor Knew Me – He Knew Amy
In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...
The Marfan Blog
An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Power Couple Surges Through Connective Tissue Condition to Help Others
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...
Beauty Enthusiast Overcomes Obstacles
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
Working from Home and Your Mental Health: The Positives
In 2020, the world saw that there are many benefits to working from home, especially for...
Nick’s Journey in Honor of Connor’s Big Heart
On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...
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