The Marfan Blog

A Journey of Acceptance

The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...

Advocacy, Awareness, Community, Healthcare Management, Quality of Life February 26, 2021July 29, 2021

Awareness, Community, Family Planning, Quality of Life February 23, 2021February 24, 2021

Marfan Moms: The Ultimate Support Group

When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...

Awareness, Know the Signs, Quality of Life February 19, 2021February 24, 2021

Broken Bones, But Not Broken

I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...

Awareness, Family Planning, Quality of Life February 12, 2021February 24, 2021

How It’s Going

In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...

Advocacy, Awareness, Education, Quality of Life February 9, 2021February 24, 2021

A Costco Shopper Saved my Life

“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...

Advocacy, Awareness, Quality of Life February 2, 2021February 24, 2021

Healthy Life Comes From Awareness

I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory