An Eagle Scout’s Generosity in Memory of a Friend
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Know the Signs, Fight for Victory
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...
I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...
In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and...