Awareness is Never Losing Someone Unexpectedly to Marfan Syndrome
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
Know the Signs, Fight for Victory
Helping Others Helps Me I share because I care. It sounds simple, but it is so true. There are...
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...
I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...