Awareness Archives - Page 4 of 9

Awareness, Community, Quality of Life January 13, 2022January 13, 2022

Carrying His Heart in Mine

My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...

In 1971, at the young age of two, Amy Grimshaw had a routine appointment with a doctor at the Army...

Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

Awareness, Community, Quality of Life September 8, 2021September 8, 2021

On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...