Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
Blog Category: Awareness
Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
A Journey of Acceptance
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
Marfan Moms: The Ultimate Support Group
When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...
Broken Bones, But Not Broken
I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in...
How It’s Going
In 2010, Maya Brown-Zimmerman and her husband, Mark, co-wrote a blog post, Marfan Through a...
A Costco Shopper Saved my Life
“If she’s your Mom, you need to get tested,” a woman said to me. She had noticed me – a...
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