Community Archives - Page 4 of 11

Awareness, Community, Quality of Life September 8, 2021September 8, 2021

Power Couple Surges Through Connective Tissue Condition to Help Others

On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...

Advocacy, Awareness, Community, Volunteer March 16, 2021January 31, 2024

Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...

The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...

When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...