Three Keys to a Positive Outcome
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
Know the Signs, Fight for Victory
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...