Volunteer Drives Successful First-Year Proclamation Project
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...
Blog Category: Community
A Journey of Acceptance
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
Marfan Moms: The Ultimate Support Group
When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...
Top Five Things I Wish I Knew Before My Aortic Surgery
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
Fierce Compassion: Becca Weust and the Stories She Tells
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
