A Journey of Acceptance
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
Know the Signs, Fight for Victory
The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My...
When my daughter, Gabriella, was diagnosed with Marfan syndrome at the age of five our family was...
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have...
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...