Losing My Sight Saved My Life
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and...
Blog Category: Diagnosis
Your Questions Answered: Medical Geneticist and Genetic Testing
If you have a connective tissue condition or are seeking an evaluation for one, you know that you...
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...
Awareness Feels Good
I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...
Finding Marfan: A Breakthrough in Mental Health
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...
5 Tips for Educating your Doctor about Marfan Syndrome
Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to...
My Marfan Story: Home for Christmas
Auburn's late husband, Ted, with their son, Kelly. In November of 1981, my little family of...
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