Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
Blog Category: Awareness
Fierce Compassion: Becca Weust and the Stories She Tells
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Reflecting on Awareness
Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...
Jimmy’s Magic Turtle
Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...
#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
Awareness Feels Good
I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...
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