In Memory of Chris Heaney
This week, we sadly bid farewell to a true pillar of our Marfan community, Christopher Heaney. In...
The Marfan Blog
Joaquin’s Story: Aortic Disease Awareness
"My whole world changed in an instant..." On July 31, 2020, my whole world changed in an...
Connected and Not Alone
I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...
A Teen’s Perspective: Finding a Community at Conference
As a teen with a connective tissue condition, building relationships with others who “get” you...
A Trip to Conference Leads to a Marfan Diagnosis for 30+ Family Members
Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who...
Passion and Outreach Lead to Marfan Awareness
A Marfan Awareness Month Blog Photo: In January, Christopher was presented with a...
Mental Health: Sharing Leads to Support and Hope
What are the mental health issues that people with Marfan syndrome and related connective tissue...
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