Healthy Life Comes From Awareness
I was diagnosed with Marfan syndrome around the age of 12 years old, while growing up in Meridian,...
Blog Category: Awareness
Three Things I’ve Learned In 25 Years Since Diagnosis
I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on...
Trendsetting Volunteers Encourage Others to #DanceForVictory
Have you seen this? Several leading Foundation volunteers recently launched a new social media...
Fierce Compassion: Becca Weust and the Stories She Tells
A few years ago, while writing stories for a healthcare company, I found myself in conversation...
Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Reflecting on Awareness
Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...
Jimmy’s Magic Turtle
Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...
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