Blog Category: Awareness

Awareness, Community, Education, Quality of Life December 2, 2019February 24, 2021

#VictoryToday

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...

Awareness, Diagnosis, Quality of Life February 20, 2019February 24, 2021

Awareness Feels Good

I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...

Awareness, Diagnosis, Know the Signs February 15, 2019February 24, 2021

Finding Marfan: A Breakthrough in Mental Health

This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...

Awareness, Quality of Life, Research February 11, 2019February 24, 2021

Adolescent, Angry & Aware: Learning to make sense of ourselves and our bodies

Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...

Awareness, Community, Quality of Life November 27, 2018February 24, 2021

Empowerment Means Saying Goodbye to the Sidelines

Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He...

Awareness, Community, Quality of Life November 13, 2018February 24, 2021

Lifesaving Education

There are few things stronger than a mother’s intuition. The strength of this “knowing” is...

Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory