Pain and Perseverance
When you're living with a condition like Marfan syndrome, it's easy to fall into the thinking that...
Blog Category: Awareness
Reflecting on Awareness
Recently my son and I were reading a book about cities before bed. “Mommy?” he asked,...
Jimmy’s Magic Turtle
Cynthia De Boer’s nephew, Jimmy, was born with a very severe form of Marfan syndrome (known as...
#VictoryToday
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan...
Awareness Feels Good
I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I...
Finding Marfan: A Breakthrough in Mental Health
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think...
Adolescent, Angry & Aware: Learning to make sense of ourselves and our bodies
Have you ever found yourself in a group of new friends and pushed yourself a little (or a lot)...
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