Community Archives - Page 3 of 11

Mental Health with Marfan Syndrome (in a Post-2020 World)

When you have a lifelong condition like Marfan syndrome, your daily experience looks different...

Awareness, Community, Quality of Life January 13, 2022January 13, 2022

My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...

Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...

Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...

Awareness, Community, Quality of Life September 8, 2021September 8, 2021

On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...

Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...

On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...