Carrying His Heart in Mine
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
Know the Signs, Fight for Victory
My story about Marfan syndrome mostly takes a back seat to my husband's. He's the one with Marfan,...
Jonathan Brink, an 18-year-old who attends Branham High School in California and is a Boy Scout in...
Looking back on her life growing up with Marfan syndrome, Taylor Storm can identify three keys...
On a crisp day in 2010, Pam Moultrup entered the hospital. She checked in at the reception desk...
Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx,...
On the morning of December 3, 2020, Nick Metz, a 16-year-old in California, was schooling from...
Amy Kipnis, the volunteer leader of our Legislative Action Team, has been a long-time volunteer at...