Education Archives - Marfan Foundation

Awareness, Education, Know the Signs September 16, 2025September 18, 2025

From Survivor to Advocate and a Roar for Aortic Awareness

Guest Blogger Ryan Rodarmer is the Director of the VEDS Movement, a Division of the Marfan...

The VEDS Movement Director Ryan Rodarmer is a genetic counselor and Type A dissection...

Awareness, Diagnosis, Education February 9, 2024July 31, 2024

I was diagnosed with Marfan Syndrome at birth. My father had a spontaneous mutation, and he passed...

I was so excited to attend the Michigan Regional Symposium in early May! We moved to Michigan in...

Advocacy, Education April 11, 2022April 11, 2022

Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...

When you have a lifelong condition like Marfan syndrome, your daily experience looks different...

Marfan Awareness Month is a time to raise awareness of Marfan syndrome among the public and...